3-year-old battles rare disorder, mother aims to raise awareness
The neurological genetic disorder affects a small portion of middle Georgia children.
Seth Bush of Middle Georgia Pediatrics says within the 15 years of running his office, he’s only treated little Legacy Faith Brundage.
Legacy’s mother Stacy Brown is now fighting to raise awareness, with hopes there will be a cure for her daughter.
"You want to see your children excel in life, and to hear that she’s not going to be able to do certain things," Brown says, "…it gets you sad, but most of all you have to just think of the positive."
Brown says she often wonders about Legacy’s future.
"Am I going to see her get married? Or am I going to see her go to a high school prom or things like that? And right now, the odds are I’m not going to, because they live very dependent lives were she won’t be able to go off to college, and get married and have children and things of that nature," says Brown.
Some of the side-effects are seizures. Legacy takes two pills in the morning, and two at night to help relieve her.
Reoccurring doctor’s visit are normal for this family.
"She gets sick quicker than any of the other children in her class,because of her condition."
Most importantly, Brown says it’s her faith, and the smile of her daughter that gets her through tough times,
International Angelman Syndrome Day is Sunday, February 15.
Brown asks the community to donate at least $15 to the foundation, and mention ‘Legacy Faith Brundage’ by logging onto www.angelman.org.
All proceeds will go toward finding a cure for this disorder.
